Do you know why the world feels called to help a whole community of people who all live in one place and need water, food and medical supplies - but continually ignores or attempts to placate a dispersed community of people suffering from seizures, unexplained broken bones, breathing problems, inability to communicate or walk without medical therapeutic intervention?
I need to solve this riddle. There's about 360,000 people who suffer from Angelman Syndrome. Scientists have cured Angelman Syndrome in mice. We only need to find a safer medicine to activate UBE3A. Researchers need materials and time. They've committed themselves to finding the best way to turn on an inactive gene and make it express an enzyme so our kids synapses can fire uncluttered. Can you help us, please?
We only need 5million in 2015, 2016, 2017, 2018, 2019. The scientists say it can be DONE with 20million.
Please stop ignoring our dying children. I need my son to be cured before his turn comes. <3 25 babies are born with Angelman Syndrome every day. Your future grandchild, cousin, nephew, niece, sibling, even your future child could be diagnosed with Angelman Syndrome.
Rest in Peace, fallen angels.
In hope for: Jayden, Sophie, Ainsley, Maggie, Emma, Taylor, Brady, Billy, Jonathan, Jonathan, Tecwyn, Tathan, Sean Parker, Sean, and Sean, Maverick, Colt, Colton, Cole, Will and Will, Michael, Jaxson, Ellie, Charissa, Madelyn and all the others I know, and especially the ones I don't know.
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